Fibro Foundation

"I know there is a cure out there and I hope we find it in my lifetime, 
but if we don't... you have to find it."
                                                              - Tucker Davis 1981-2010

Newly diagnosed? Click here.

In 2008, when Tucker Davis (age 26) was diagnosed with fibrolamellar hepatocellular carcinoma (FHC), he founded the Fibrolamellar Cancer Foundation (FCF) with the hope of finding a cure for this often fatal disease. Because the incidence of FHC was so rare, little research had been conducted at that time. FCF has helped change that.

FCF's mission is three-fold:

  1. Find a cure and treatment options

  2. Raise awareness of this disease

  3. Connect and support the fibrolamellar community of patients and their families

FCF is an IRS approved 501 (c) (3) tax deductible public charity. 100% of net donations go towards research. All FCF's overhead and administrative costs are paid by the Charles A. and Marna Davis Foundation and Stone Point Capital.
 

~~~~ Featured Ambassador Events in 2014 ~~~~

For a small rare cancer foundation there were 46 different events held during this calendar year including 30 coffee socials!  What an incredible outpouring of support.  Below is a brief listing of the various events and the family/patient behind each.  Further details on some can be seen in the Past Events section of the website.   

Enjoy the photos linked here from several of the following events.

February
*Cycle for Survival, WDC – Team Wear Your HelMatt(for Matthew Lynch)

March
*Cycle for Survival, NYC - Kevin’s Crew (hosted by Ellen Cassazza)

April
*Alpha Phi Phight Against Cancer Sumo Wrestling Competition at Syracuse University (for Tahnee Shah)

*Alpha Tau Omega (Arkansas Tech University)“Omega Factor; Lip Synching” event

 June
*Robert’s Brewery Tour: Eat, Drink, & F*!KCancer! (hosted by Robert Stockwell)

August
*$1 dollar challenge (Tim Widener sponsoring for Super Sadie)

September
*Quilt & purse raffle at the FCF family/patient gathering ( sponsored by Sandy Hawthorn)

*3rd Annual Free Fall to Fight Cancer(in memory of Zach Grullon)

·*Hamptons Marathon (Team Tahnee)

October
*Stone Point Capital Foundation Charity GolfT ournament

*Fibrolamellar Coffee Month (Gail Trecosta & 30 coffee social hosts)

*Crook family pumpkin carving fundraiser (in honor or Jamie Crook)

*Grete’s Great Gallop in Manhattan (Team Tahnee)

 November
*Cheers to Jay (hosted by Sheila Alexander in memory of Jay)

*2014 FCF Calendars (organized by Gail Trecosta)

*Team FCF at NYC Marathon – 2 runners for FCF

*Alpha Chi Rho & Alpha Sigma Tau (RadfordUniversity) Basketball Tournament

*El Tour de Tuscon (Team Tracy; in memory of Tracy Myers-Powers)

Ongoing

Autumn Smith’s jewelry shop on Etsy

Amazon Smile

Glenn Alexander wrote "Here's To Jay" in honor of his nephew who died from fibrolamellar at only 20 years old.  The song is not only available at CD Baby, but also now on iTunes, Google Play and Amazon. Links to the above sources appear here under Jay’s photo.

I-Tune sales of The Light Inside, song written for FCF by Josh Panda

*******************************
 

Many thanks to each organizer of these events.  Some brought in big donations, like $20,000; the total for the coffee socials was almost $30,000.  Others brought in several hundred.  Whichever the dollar amount, the commitment to raise monies for FCF is most appreciated. 

Enjoy the photos linked here from several of the above events.

Previously Featured Ambassador stories archived here.
 

Photos in header:  (Above, left) Tucker Davis, (Above, right) Joshua Honeyman, former Rockefeller University Fellow, at work in Dr. Simon’s research lab in NYC 

 

CONTACT USJOIN