Fibrolamellar Cancer Foundation
Research News
Memorial Sloan Kettering has just added specific reference to fibrolamellar liver cancer on their website: http://www.mskcc.org/cancer-
This website reference also includes the following research news information:
The Fibrolamellar Hepatocellular Carcinoma Consortium
The Fibrolamellar Hepatocellular Carcinoma Consortium is a collaborative initiative that has been developed to improve treatment options for people with FLL-HCC. Led by Memorial Sloan-Kettering Cancer Center in conjunction with Johns Hopkins University and the University of California, San Francisco, the consortium’s mission is to:
promote awareness about FLL-HCC within the oncology community
develop new therapies for FLL-HCC
pool information on patients with FLL-HCC in order to document trends in diagnosis, treatment, and survival
The consortium will soon be opening a clinical trial testing a novel treatment designed specifically for FLL-HCC. The treatment will target certain cell-signaling pathways that appear to be overactive in this disease. This will be the first clinical trial dedicated to patients with advanced FLL-HCC that cannot be treated with surgery.
In addition, the consortium plans to open a registry to collect information on patients with FLL-HCC. Patients who agree to participate will be asked to donate a blood sample as well as available tumor material. These samples will be banked and used for future research projects on FLL-HCC.
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The following article acknowledged FCF’s funding of Doctor Torbenson who was the recipient of one of four $50,000 "Freedom of Pursuit" research grants.
Fibrolamellar Carcinomas are Positive for CD68
Modern Pathology (2010)
Fibrolamellar carcinomas are a unique type of liver carcinoma that arise in non-cirrhotic livers of young individuals. Despite their distinctive appearance, recent studies have demonstrated a lack of consistency in how fibrolamellar carcinomas are diagnosed by pathologists. Read more >>
Announcements
Welcome
Welcome to our new website. We hope you find it interesting and informative. This is our modest beginning to develop this site into all things fibrolamellar, a place for patients, doctors, researchers and donors to help fight this killer cancer.
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